Home
MISSION
RESOURCES
Contact Us
Blank

Train To Philly:
A Pediatric Medical Journey

Train To Philly: A Pediatric Medical JourneyTrain To Philly: A Pediatric Medical JourneyTrain To Philly: A Pediatric Medical Journey
Home
MISSION
RESOURCES
Contact Us
Blank
More
  • Home
  • MISSION
  • RESOURCES
  • Contact Us
  • Blank

Train To Philly:
A Pediatric Medical Journey

Train To Philly: A Pediatric Medical JourneyTrain To Philly: A Pediatric Medical JourneyTrain To Philly: A Pediatric Medical Journey
  • Home
  • MISSION
  • RESOURCES
  • Contact Us
  • Blank

Mission

Advocate for Change

Patient/Family Resource

Patient/Family Resource

As a Pediatric RN, I have seen other patients end up in Psych facilities with these medical conditions because they have no where to go.  Some of them suffer to the extent they become suicidal or begin to self-harm.  Our goal is to create awareness and improve patient access to care throughout the U.S. and starting in the South! It is out

As a Pediatric RN, I have seen other patients end up in Psych facilities with these medical conditions because they have no where to go.  Some of them suffer to the extent they become suicidal or begin to self-harm.  Our goal is to create awareness and improve patient access to care throughout the U.S. and starting in the South! It is outrageous that the local medical community is providing misinformation and has made navigation of services for these pediatric medical condition even more difficult.

Patient/Family Resource

Patient/Family Resource

Patient/Family Resource

Words cannot express how difficult this journey has been and would have been even without the medical misinformation and errors in care!  As Emma improves, it would be easier to just hide in the peace of the moments that have been absent for so long.  But personally, we are aware of others in our community that have experienced some of th

Words cannot express how difficult this journey has been and would have been even without the medical misinformation and errors in care!  As Emma improves, it would be easier to just hide in the peace of the moments that have been absent for so long.  But personally, we are aware of others in our community that have experienced some of the same challenges finding help for their suffering child.  We hope sharing our story will help others!

BUY NOW!

Advocate for Resources

Patient/Family Resource

Advocate for Resources

It is outrageous that while Emma was suffering pain from AMPS, we were forced to board a train to Philly for services that could have easily been provided in our home state of Georgia.  The same is true for her condition likely related to PANDAS/PANS.  She now receives IVIg infusions in Georgia that are prescribed by a doctor in another s

It is outrageous that while Emma was suffering pain from AMPS, we were forced to board a train to Philly for services that could have easily been provided in our home state of Georgia.  The same is true for her condition likely related to PANDAS/PANS.  She now receives IVIg infusions in Georgia that are prescribed by a doctor in another state.  I am angry that many of the doctors in Atlanta see some of the same symptoms like "autonomic dysfunction" and say nothing is wrong and have practically been useless.  We will continue to advocate for local treatment options.


Copyright © 2024 Train To Philly - All Rights Reserved.


Powered by GoDaddy

This website uses cookies.

We use cookies to analyze website traffic and optimize your website experience. By accepting our use of cookies, your data will be aggregated with all other user data.

Accept